The actual test is now more or less a Christmas tree ornament. Yes, all of those special tests are with us.
Our dear dog Fergus, a now oafy and perfectly complacent Labrador, decided he would roam the neighborhood. After many fence repairs and efforts to make sure 3 little people could not mess with our two gates, he still found a way to lose his collar in the yard and get out, managing to get picked up by animal control for the bargain price of $125.00. Talk about angry! The city would want to charge us that amount as well until I appeared before the magistrate with the girls and pregnant belly to dispute the situation. Thankfully, I got out of it and by the next day had an appointment to have the dog neutered. He certainly learned not to mess with me after that day and has been nothing but charming ever since.
He looks totally innocent here, doesn't he?
There were surprising issues with friends that arose that reminded me of those girly drama days in 8th grade causing hours of tears and frustrations. Certain family members made it clear they only wanted particular conditions attached to their relationships with our family. I was trying to work a part time job to have a little extra spending money. This was a very isolating time and despite my efforts to send smoke signals of distress from "my island," I really felt like many of the boats of friends and family were just floating by waving under the assumption that I was teaching my kids about fire. Perhaps all of those hormones had something to do with it, but even in retrospect, this was an extremely emotional time with a lot of negativity and sadness seeping into my life.
It was weeks later that I received word from a friend that her sister who had three small children suddenly died after putting the kids to bed one night. The circumstances of her death eluded friends and family. There was no warning. This beautiful mother was suddenly gone from her children and husband and family forever as she sat down to check her email after a long day. Having lost my brother at a young age in an equally tragic situation in the same town, I was compelled to support her and attend the funeral. It was heart wrenching. I came away from the funeral in awe of all that moms do and all that is gone when they aren't able to be there for their families. It would later be revealed that this mom died of a congenital heart defect, unknown to her family until too late. The question hung heavily over my head: What happens when something happens to us as mothers of young children?
I took this question back to my support circle of moms who regularly got together every Monday. They were great. They knew I attended the funeral and the circumstances and it was totally fitting for me to explain this experience. My friend Julie piped up in the midst of my tears. She had battled breast cancer and was in remission. Her words echoed like organ pipes in an empty sanctuary, "Missy, you would be amazed." This statement was followed by what I remember as a silence. Along with it, the definitive understanding that it is those of us who sit amongst you will rise to the occasion in compassionate and giving ways you just can't even imagine until you really need it. She conveyed the need for us to just trust that if support is needed, support will be there. Julie has since lost her battle with cancer, but her words remain with me to this day.
By this time in the year it is August of 2007. That part time job I had taken ended with an attack on my character which I found incredibly offensive and quit. Something I don't like to do, but my sanity needed it.
Word came to me days later that one of my former students was out shopping with her mother and a terrible thing happened. The mom dropped dead unexpectedly in the store as they shopped for a movie to rent for the night. I knew her fairly well from typical school interactions for years. She was the fun-loving and involved mother of three school-aged girls and died of a heart attack in the middle of the day doing ordinary things. It was another funeral to attend and more kids to worry about how they would manage without their mother. This was getting really difficult.
Within days after this, I came home after taking the kids on a bike ride. Jeff was out of town so it was essential that I kept the kids busy and outside as much as possible to ensure maximum time in the arms of Morpheus. The twins were 2 at the time and Izzy was 3. Sadie could ride in the seat on the back of the bike while Izzy and Lucy rode in the bike trailer as their pregnant and breathless mama pedaled and pedaled. And wasn't my motive in doing this to make them tired? It was all good though.
Until we got home. I set the children free from the confines of the bike seats and let them play outside while I got something quick and easy out for dinner. I no sooner set a pot of water boiling on the stove when Sadie and Izzy came screaming from around the house. They were frantic and completely panicked, running and flailing through the yard by the time I caught up with them. It wasn't long before I realized that they were being swarmed by bees.
I had no idea if they were allergic to bee stings or not. Bees were crawling out of their shirts and pants and flying around us even after coming inside. I stripped off all of their clothes and examined them for stings. No one seemed to be puffing up, but it was hard to tell with so much crying and screaming happening. They were starting to swarm around me. I carried the girls from one room to the other hoping to eventually get away from the bees. I quickly called my friend Jen to help me get a handle on the situation. I had no idea how many there were at the time, but when all was said and done and things calmed down, I think I counted between 12 and 18 dead bees in the house up cleaning up. That was just what made it inside the house! Sadie ended up with about 5 stings and Izzy with 7. I even found a dead bee in my wallet the next morning at church as I reached for an offering. I didn't need to do that again any time soon.
The more well known part of that year's story then began to unfold the next month, as previously documented on this blog and the care page. September 17 would be the day my concerns would shift from all that had happened over the summer to caring for a premature baby, coming to understand Down syndrome, and really getting hammered with ultimately 3 open heart surgeries on our sweet little baby who had so many strikes against her. By May of 2008, we would be home for a while.
But the 13th year was not over yet. In that very beginning of June, 2008, I was diagnosed with my own permanent and irreversible autoimmune disease. With daily medication and attention to the symptoms, it's pretty manageable from everything I understand thus far. Who wants to hear that though? Aye.
Even though Bernie's heart issues fired up again in the next month, the 14th year began on June 4, 2008. Her next surgery worked and monumental hurdles were jumped. The kid made history in lots of ways.
A portion of the new children's and women's hospital brochure. Happy Bern is in the lower left corner...
Bernie and Lucy read Kelle Hampton's new book about her journey through her daughter's first year of life with Down syndrome. It just made #11 on the NY Times Bestseller list this week! Pick it up!
P.S. You may see the above photo on Kelle's blog "Enjoying the Small Things" soon if you're a follower.
I'd face all of it all over again. To be able to see and have what's come about as of today makes all of those other events worth facing. People are amazing. Each person who became known to us along the way, no matter how insignificant their acts may seem, was part of this transformation--my transformation--by a greater love to know and understand the big and small stuff that matters and the forces that truly make life grand.
Thank you for five incredible years. I am one LUCKY lady. Happy Friday the 13th! And how strange...I just realized this is the 13th post on this blog!
Mrs. Smith, I loved reading your story and I love watching your family grow. I felt that I could relate, in a small way. Me and my husband, last June, went through a hard time when his little brother Nolan, who was 18, passed away. We were both able to learn so much about the power of trials and the importance of family. It brought so much strength to me. I am so happy that you have a cheery attitude towards it all and aren't wallowing in bitterness...like some people do.
ReplyDeleteAnyway - I didn't want to take up all your comment space, just wanted to let you know how much I enjoyed hearing this story and to say "hi!"
Much love,
Clarissa (formerly Lewis) Anderson
Wow, what a great story...prequel...well, you know what I mean! Your daughter is beautiful and she's so lucky to have awesome sisters & amazing parents.
ReplyDeleteSo glad you shared your blog with me...keep in touch!
~Tracy & Ty