A Good Day for a Bad Hair Day

I'm happy say that we are worrying about lesser things today! Bernie is keeping food down better, successfully used the bathroom, her chest tube output is decreasing, and she is sitting up in bed on her own without assistance (if presents are present). Most importantly, we have seen brief smiles, even if she still hurts quite a bit. 

We hit the floor and the sisters arrived within the same 20 minutes. Getting up and out of bed to walk to the rice table was an instant priority. It was a great distraction and motivation to finally get moving and have interactions with the girls. 

 

 

The big sisters did some extreme crafting with the child life team. I am pretty sure they cranked out more crafts in an hour than the staff had seen in there all week. Bernie said she wanted to do some crafting, but her tummy said otherwise. She went back to the room and threw up instead. Red Monkey helped her sleep it off. 

 

 

I had a "Saline Reprieve" at my cousins' house to stock up on sleep. Jeff stayed on at the hospital while the big girls and I ducked out. Staying in this hospital environment certainly makes me want to put plush carpeting and soft surfaces throughout my house. Every little exchange in a comfy home is really such a luxury. 

Today we had a pretty social day and visited with the cousins, family, and friends. 

 

 

 

Bernie certainly enjoyed a few more presents as well as cards and pictures of everyone in her class. She had to sleep off the excitement once again, but all of these pictures are taped to the wall for her to see. Such fun cards!  Don't worry, 2-3 kids, Bernie is again eating cheeseburgers and will be back to school within a couple of weeks!😍🍔🍔🍔❤ 

 

Tomorrow is an big day as the dressing on her sternum will come off, the chest tube will come out (very unpleasant from my perspective, but she will feel so much better), we will get more aggressive in increasing her INR, and maybe, just maybe we can think about addressing this...extreme bed head!

 

It will be a good day when this is our biggest issue. It is the densest, most matted bird's nest of a head of hair I think I've ever seen.  

Your prayers and positive energy to get through the procedures tomorrow would be appreciated. If you could also include Uncle Alex (Jeff's brother) who will be starting round 3 of 4 of his chemotherapy, that would also be appreciated. Our Grandy is working on clearing her lungs so she can continue to battle stage 4 GIST like a boss, but she's also needing some prayers right now. It's a tough time to be a Smith, but Bernie prayer warriors have tremendous healing power and we can share the love I'm certain. Thank you!!

Happy Sunday, Everyone!