She's wrapping up using her oxygen, wanting to get up, and moving more. She ate 3 great meals and as you can see from our photo report of the day, we had a pretty good day.
Ironically, we are on the brink of kicking off Congenital Heart Defect Awareness Week (February 5-12). So many of you ask what our family needs during challenging times like this. We need your connection. We need your prayers. We need the amazing science and the advancement of research relating to treating congenital heart disease. Sure, Bernie loves the presents that she gets and we certainly have enough to keep us busy here in this hospital room for quite some time, but most significantly, we need to be assured that her condition can be successfully treated over a lifetime. Today the hospital launched a new challenge for heart week to raise funds to make that promise to Bernie and kids like her. Donations will be matched by The Charpie Family Foundation up to $30,000. If you are interested in this opportunity, please click here.
The CHC Patient and Family Centered Care 3 Momskateers.
I hope Bernie likes Patrick's hair. It may come out looking just like his by the time we can shower and untangle it!
Tia on rice table overload.
Thanks again for following along. Tomorrow is a big day. Hopefully all of the numbers will be on our side. An update will be posted in the afternoon.
Bernie 💪🏻🙏🏻❤️!!!!
ReplyDeleteGreat news! Prayers for a good outcome today! Way to hang tough Bernie!
ReplyDeleteHey Bernie!! Sending lots of love and well wishes from the UK and hope you get better soon, so you can come back to BR and play with Spanky! LKH Miss Lauren <3
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