9:25 AM We sent her off to the OR about an hour ago. We anticipate some challenges getting through the scar tissue. It's very hard to see your baby get wheeled away when she sleepily asked for me to sit on the bed. I told her I would be there when she wakes up. She said she would be good for "Nenna"...what she calls Dr. Romano.
In leaving the pre-op area after Bernie was wheeled away, we got in the first elevator that opened up to take us upstairs. In it was an older couple, probably in their late 70s with their adult daughter with Down syndrome coloring a blue bird in a wheel chair. That made us both feel really good. We will take all the good signs we can get.
Chaplain Julie (our favorite) met us in our room and we had a nice prayer together. We will just be wandering around together and packing up our room here in general care to move to the PCTU. Not really feeling social at all, but will keep updates coming as we can.
We won't see either of them for a few hours. It may be well after lunch. Updates will be added to this blog entry as we have them.
Thanks for following along.
11:22 We just got word the Bernie is "playing nicely" in the OR. They got through her sternum without issue. Her chest is open, all the lines are in, and she is on bypass (heart lung machine). There is a room now available for Jeff and I at the Mott House through the weekend (8 in-hospital Ronald McDonald accommodations). It has a single bed and a recliner chair where we can sleep and take naps to survive the PCTU. We should have another update in an hour on how the sub-aortic stenosis resection is going.
12:08 the resection is complete, she is off bypass, her gradient is at 0 from 97(wow! We were going to be happy with 15-20). We will be seeing Dr. Romano soon and they even think she will be extubated today. Let the recovery begin! This is where we can really hope and pray she still plays nicely!!
Just some thoughts about how one more chromosome shapes and changes the attitudes for the better because she is part of our world. And sometimes it's just too good not to share.
Thursday, May 14, 2015
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ReplyDeleteThe Smiths and especially the Bern are top of mind and heart today as we follow you on this journey. Know that there are so many others who are directing their love your way. May you feel that love and let it carry you through. Hail the Bern, Heal the Bern!
ReplyDeletePeace and big love to you Jeff and the girls.
The Parvels
Keeping Miss Bernie in our prayers, as well as her doctor and family. Thinking of you all this am. Sending prayers and positive thoughts.
ReplyDeleteSo glad you were able to get a room at Mott House! Remember, Hotel Maloney is open for anyone needing accomodations, a babysitter, or meal. We're here, just let us know.
ReplyDeletexoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxo
Fantastic news! Way to go Bernie!!! The fairies are still flying for an easy recovery! Hugs
ReplyDeleteShe's one tough cookie. Keep it up Bern.
ReplyDeleteSending love and lots of prayers! -Samantha Bennett
ReplyDeleteawesome!! prayers works in numbers:) way to go Bernie! hoping recovery is god speed and goes smoothly with not complications!!
ReplyDeleteWay to go, Bern!! I'm so happy for you! You are a champion. Thanks for being a good girl. :-)
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